Eating well to lower blood potassium and phosphate levels

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This information is for people who need to lower the potassium and phosphate levels in their blood.

Having chronic kidney disease can make potassium and phosphate levels in the blood too high. This can make you unwell. 

This page covers: 

  • Which foods you can choose that are low in both potassium and phosphate.
  • Which foods are high in phosphate and gives recommended serving sizes for some of these. 
  • How to cook vegetables to make them lower in potassium.
  • Which additives to try and avoid because they contain potassium and phosphate.

How can I lower my potassium and phosphate levels? 

To reduce the amount of potassium and phosphate in your diet:

  • Eat a healthy diet and choose low potassium and low phosphate foods.
  • Cook vegetables by boiling in water.
  • Check ingredient labels and limit foods with potassium and phosphate additives.

Why do I need to reduce levels of potassium and phosphate in my blood?

Potassium is a mineral found in many foods. It helps our nerves, muscles, and heart to work well. Phosphate (also known as phosphorous) is needed for healthy bones.  

When the kidneys are not working properly, the levels of potassium and phosphate in the blood can rise too high.  

High levels of potassium can cause:

  • A change to the way your heart beats, which can be very dangerous.

High levels of phosphate can cause: 

  • Hardening of your blood vessels. 
  • Damage to your heart .
  • Weakening of your bones.
  • Aching joints.
  • Itchy skin.
  • Sore eyes.

The normal blood levels are:

  • Potassium between 3.5mmol/l and 5.5mmol/l
  • Phosphate between 0.8mmol/l and 1.5mmol/l

What can I eat? 

Aim for five servings of lower potassium vegetables and fruit per day.

Vegetables and fruits are high in fibre and help to ensure you have a healthy gut and regular bowel movements. A higher fibre diet reduces the amounts of potassium and phosphate that gets into your blood stream. Vegetables and fruit help to manage potassium levels in the blood. They are best eaten spread out over the day.

Check the list later on this page for the best lower potassium options.

Choose wholegrain, starchy carbohydrate foods

These foods, such as bread, rice, pasta and cereals give us energy. Try to include one serving at every meal. Choose wholegrain varietiessuch as those listed below as they are high in fibre:

  • Wholemeal or granary bread.
  • Wholegrain cereals such as shredded wheat or Weetabix.
  • Wholewheat pasta.
  • Brown rice.

Potatoes, yams, cassava, and plantain are high in potassium so should be cooked by boiling in water and be eaten in smaller amounts.

Check the list later in this information for cooking tips and the best lower potassium options. 

Eat some pulses, fish, eggs, meat and other protein foods

These foods are high in protein. Pulses, such as beans, peas and lentils, are good alternatives to meat as they’re lower in phosphate and a good source of fibre, too. If they are making up the main protein part of your meal and you are not having meat, a 200g portion is recommended.

If you are eating these with meat, limit pulses to one tablespoon.
Eggs are naturally high in phosphate, and this will get into your bloodstream very easily.  

  • To help manage your phosphate levels, eat eggs in moderation (4-6 per week).  

By eating fresh, home cooked, meat or chicken you can avoid the potassium and phosphate additives often found in processed meat. We are all recommended to eat less processed meat, such as ham and sausages. This is because of its links with causing bowel cancer. If you’d like to eat small amounts of processed meats occasionally, ask your dietitian to help you find brands that are free from potassium and phosphate additives. 

For more guidance on portion sizes of meat speak to your dietitian. For information on foods to reduce your risk of bowel cancer see the NHS website listed at the end of this information.

To help manage your potassium and phosphate levels:

  • Eat more meals based on beans, peas or lentils. There are some great recipes kidney friendly recipes from Kidney Kitchen:
    Kidney Kitchen | Kidney Care UK
  • Eat eggs in moderation (about 4-6 per week).
  • Eat fresh, home cooked pork, beef, chicken instead of processed cooked meats and sausages.

Eat some dairy and dairy alternatives

Dairy and dairy alternatives such as milk, soya drinks, yoghurts, and cheese are naturally high in potassium and phosphate which will get into your bloodstream very easily. Dairy and dairy alternatives are good sources of protein and calcium so should be eaten in moderation.

To help manage your potassium and phosphate levels:

  • Limit dairy foods to 2 moderate servings per day – see the list later in this information for serving sizes.

Dairy alternative milks, such as soya, oat and almond drinks vary in potassium and phosphate contents. Your dietitian can guide you on brands containing lower levels.

Eat foods high in fat, salt, and sugar less often and in small amounts

Many of these foods can be high in potassium and phosphate because of additives. Check the list later in this information for the best lower potassium options.

Cooking tips to reduce the potassium in potatoes and vegetables:

  • Peel potatoes, sweet potatoes, cassava and yam. Cut up and boil in plenty of water. Do not use this water for gravy, soups, or sauces.
  • Boil vegetables and potatoes before adding to stir-fries, stews, or casseroles.
  • Part boil before roasting and frying. Try not to cook vegetables and potatoes in the steamer, microwave, air-fryer or pressure-cooker as this will not reduce their potassium content.

Why should I eat less potassium and phosphate additives?

Both potassium and phosphate are found naturally in all foods. They may also be used as food additives. The potassium and phosphate from food additives gets into your blood stream more easily than that found naturally in food. This will cause higher blood levels of potassium and phosphate.

How do I eat less potassium and phosphate additives?

The names of the additives, or their E numbers, are listed on the ingredients labels where they have been used. Additives with ‘pot’ or ‘phos’ in their name will contain potassium or phosphate.

Check ingredient labels for the additives below to avoid. 

Avoid these additives

E numberNameWhere found
E508Potassium chlorideFoods labelled ‘reduced salt’ or ‘low salt’. Crisps and savoury snacks.
E452PolyphosphatesProcessed potato products such as potato waffles and croquettes.
E451TriphosphatesProcessed cheese such as spreads, triangles and some slices.  Icing sugar, flavoured syrups.
E450DiphosphatesBakery products such as sponge cakes, crumpets, naan bread and scones, processed meat and cheeses, soups sauces, battered products such as fish.
E343Magnesium phosphatesBakery products, salt substitutes.
E341Calcium phosphatesShop-bought desserts and powder dessert mixes, instant pasta mixes.
E340Potassium phosphatesProcessed meats such as ham and sausages. Processed cheeses, sports drinks, dried milk powder.
E339Sodium phosphatesDried milk powder, canned soup, breaded chicken and fish.
E338Phosphoric acidProcessed meat, sweets, cakes, chocolate, dark-coloured cola type drinks.

I also have diabetes, what can I eat?

It can be difficult when you have other health conditions which also affect your eating. For your diabetes you should continue to follow a healthy diet. A diet with wholegrains and less processed food will be good for your diabetes and for your potassium and phosphate levels.  

In addition, you could:

  • Choose low potassium and low phosphate foods – see lists later.
  • Cook your vegetables and potatoes by boiling in plenty of water.
  • Check ingredient labels and limit foods with the potassium and phosphate additives listed above.

Which foods can I eat?

Here is a list to help you choose foods that are lower in both potassium and phosphate.  

Here is some information to help you limit foods that are high in both potassium and phosphate: 

Foods that are higher or lower in potassium and phosphate

FoodsLower in potassium and phosphateHigher in potassium and phosphate
FruitApple, strawberries, raspberries, blueberries, gooseberries, blackberries, passion fruit, grapefruit (1/2), nectarine (small), lychees, grapes (handful), fruit cocktail, melon or watermelon (1 small slice), pear, mango, satsumas, plum (1), pineapple, cherries, orange, peach, tinned apricots, tinned rhubarb, kiwi.Fresh apricots, avocado, bananas, blackcurrants, damsons, figs, greengages, guava, pomegranate, fresh rhubarb, dried fruit such as dates, raisins, sultanas, prunes. 
Star fruit is not recommended as it is harmful to the kidneys. 
Vegetables
(for more information on portion sizes ask your dietitian) 
Asparagus, aubergine, baby corn, beansprouts, pickled beetroot, broccoli, cabbage, carrots, cauliflower, cucumber, cress, leeks, lettuce (1 small bowl), mange tout, marrow, tinned mushrooms, onion, peas, peppers, pumpkin, runner, beans, spring greens, kale, tinned sweetcorn, tinned tomato (1/4 tin).
Potatoes, sweet potatoes, cassava, yam - boil first. Then mash, fry or roast.
Eat in smaller amounts: broad beans, squash, sprouts, watercress, spring onions, green beans, radishes, celery.
Artichoke, fresh beetroot, celeriac, corn on cob, sweet potato, courgette, fennel, fresh mushrooms, Swiss chard, parsnips, tomato puree, tomato pasta sauce, spinach, okra. cassava, yam. plantain, Chinese leaves, pak choi.
Chips, jacket potatoes.
Frozen chilled or dried potato such as oven chips, potato waffle, hash browns, ready-made or instant mashed potato.
MeatUnprocessed, home cooked fresh meat.Liver, liver sausage, liver paté, saveloy sausage
FishFresh fish such as haddock, cod, salmon, trout.
Boneless tinned fish such as salmon or mackerel.
Sardines, pilchards, whitebait, fish paste.
ShellfishTinned crab.Scampi, fresh crab.
SoupsTinned cream of chicken, packet chicken noodle, oxtail soup.Vegetable and tomato-based soups.
Spreads and oilsOils, butter, margarine, jam, marmalade, honey, lemon curd.Chocolate, peanut butter, tahini, yeast extract (Marmite), treacle.
EggsUp to 4-6 per weekIn moderation.
Beans, pulses
(*cooked weight
**lower in protein)
Choose beans and lentils canned in water as they are lower in potassium.
Recommended serving size is 200g where they are the main protein part of your meal: Tofu, Quorn, lentils*, chickpeas*, beans*, hummus**, baked beans
Soya beans, aduki, pigeon and pinto beans
Dairy and dairy alternatives2 servings per day.  Recommended serving sizes:
Milk 200ml
Yoghurt 1 small pot (125g)
Custard, rice pudding1/3 tin (130g)
Cheese 1 small matchbox size portion
Cottage, ricotta and cream cheeses are lower in phosphate 
For guidance on plant milk alternatives, speak to your dietitian
 
Starchy foods, bread, and breakfast cerealsWholegrain types such as brown pasta, brown rice, wholemeal bread
Pitta, croissants, English muffins. Home cooked porridge, Shredded wheat, Weetabix
Cornflakes, rice krispies.
Bread with dried fruit, nuts or chocolate
Naan bread, crumpets
Cereals containing dried fruit & nuts (such as muesli, Fruit and fibre, Sultana Bran), All-Bran, Bran buds, Bran Flakes, Oat crisp.
Cakes and biscuitsMadeira cake, doughnuts, meringues, jam swiss roll, danish pastry (no nuts), jam tart, iced bun.
Plain biscuits, jam or vanilla cream filled biscuits, shortbread, plain crackers such as water biscuits, crackers, breadsticks.
Cakes and biscuits containing dried fruit, nuts, chocolate.
Scones, muffins, chocolate cake, packet cake mixes.
Snacks, sweets, and chocolateCorn, maize, wheat snacks, popcorn, pretzels, prawn crackers.
Some snacks have added potassium chloride. Ask your dietitian for a list of suitable options.
Fruit pastilles, boiled fruit sweets, sherbet, peppermints, marshmallows, turkish delight (no chocolate or nuts), chewing gum, fruit gums.
Nuts, seeds, bombay mix, Twiglets, liquorice.
Potato crisps.
Chocolate.
 
Seasoning and condimentsOrdinary salt sparingly.
Pepper, herbs, spices, ginger, garlic, lemon juice, chilli sauce, mint sauce, mustard, mayonnaise, salad cream, tartare sauce.
 

Low sodium salts such as LoSalt, Solo (these contain potassium chloride)

Pesto

Tomato ketchup / brown sauce - limit to 1 tablespoon.

Drinks

Tea, herbal tea, fruit squash, light-coloured fizzy drinks.
Coffee – recommended to limit to 1 cup per day.
Dry sherry, liqueurs, spirits, white wine (1 small glass per day).

 

Coffee - try to limit to 1 cup per day.
All fruit and vegetable juices / smoothies.
Malted or hot chocolate drinks (such as Ovaltine,   Bournvita, cocoa), milk shakes, yoghurt drinks.
Cider, strong ale, stout, Guinness, bitter, lager, red wine.

 

Foods high in fat, salt and sugar

This booklet gives a full range of foods that are low and high in both potassium and phosphate. It includes some foods that are high in fat, salt, and sugar such as savoury snacks, cakes and sweets. These are included to give you a variety of options. You may prefer not to eat these foods if you are trying to eat less fat, salt and sugar or if you have diabetes. 

What if the foods I eat are not listed here?

If a food you eat is missing ask your dietitian for guidance.  Our contact details are on the NBT Nutrition and Dietetics Service webpage:

Nutrition & Dietetics | North Bristol NHS Trust (nbt.nhs.uk)

How can I eat more sustainably?

Many people want to eat food that is more environmentally friendly. These ideas are good for the planet and for you too:

  • Limit red and processed meats. Try some plant food sources of protein such as beans, lentils, soya mince, Quorn, tofu instead.
  • Moderate the amount of dairy foods you eat and consider a plant based milk.
  • Eat less processed food that is high in fat, sugar, and salt.

Summary

  • This information has shown you ways you can eat less potassium and phosphate by:
  • Eating a healthy diet and choosing low potassium and low phosphate foods.
  • Cooking all vegetables by boiling.
  • Checking ingredient labels and limiting foods with potassium and phosphate additives.

Useful webpages

For guidance on healthy amounts of meat to help reduce your risk of bowel cancer: 
Red meat and bowel cancer risk - NHS (www.nhs.uk)

Information on kidney disease and food written by the kidney dietitians at North Bristol NHS Trust:
Nutrition and Dietetics Patient Information | North Bristol NHS Trust (nbt.nhs.uk)

Recipes to enable you to cook delicious kidney friendly meals from scratch:
Recipe Index | Kidney Care UK

Practical advice to help you reduce your weekly food shopping bill while maintaining a nutritious and kidney friendly diet:
Shop for a kidney friendly diet on a budget | Kidney Care UK

© North Bristol NHS Trust.  This edition published May 2024. Review due May 2027. NBT003671.

How to eat more protein

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Information for kidney patients

This leaflet will tell you how to eat enough protein to keep you well or to help you recover from illness. You may need extra protein now because:

  • Your body is losing protein through dialysis.
  • Your body is losing more protein than usual. This happens during infections, especially peritonitis.
  • Your appetite is small, and you are not eating enough protein.

Why are protein foods important?

We need protein in every part of our body. It is essential:

  • For strong muscles.
  • To fight off infections and help recovery.
  • For healthy skin and blood.

What if I usually limit phosphate, potassium, and salt? 

You may not need to limit foods that are high in phosphate, potassium, or salt now.  Your dietitian will give you more guidance.  If you take phosphate binder tablets you should continue to take these as usual.   

Which foods are high in protein?

Meat, chicken, and fish:

  • Fresh, unprocessed meat, chicken, and fish are lowest in salt and phosphate.

Dairy:

  • Milk.
  • Yoghurt – look for higher protein options with more than 7g of protein per 100g such as Skyr or Liberté.
  • Cheese.
  • Milk puddings such as rice, semolina and tapioca puddings, and custard.

Vegetarian options:

  • Eggs.
  • Beans, lentils (including dahl) and chickpeas (including hummus).
  • Soya milk.
  • Tofu and tempeh.
  • Quorn.
  • Nuts.
  • Seitan.

How can I eat enough protein?

Protein cannot be stored by the body, so you need high protein foods 2-3 times a day. As a guide aim for the following portions and serving sizes: 

  • Cooked meat or chicken about the size of half of your hand (90g). 
  • Cooked fish about the size of your hand (140g).
  • 2-3 eggs (120g-180g).
  • Cheese about the size of your index and middle fingers (50g).
  • About 4 tablespoons of beans or lentils (100-140g).
  • About 3 tablespoons of nuts (50g).

If you have peritonitis, you will need to eat more protein than usual. Try to have 2-3 high protein snacks in addition to high protein meals. High protein snacks can also be helpful if you have a poor appetite and are eating smaller meals than usual. There are some ideas for meals on pages 6, 7, and 8.

Fatty and sugary foods

You should also try to eat more high fat and high sugar foods. This will help your body use the protein you eat. 

Swap low or reduced fat and sugar foods for full fat and full sugar options. For example, swapping semi-skimmed milk for full fat milk. 

If you have diabetes you may need to check your blood glucose levels more often at this time. You may also ask your diabetes team for advice. When you have recovered you should return to your usual healthy way of eating. 

What meals, snacks, and drinks are high in protein? 

Here are some ideas for high protein meals, snacks, and drinks:

High protein meals

Breakfast or light meals:

  • 1 scrambled egg and slices of bacon.
  • Cereal and milk.
  • Porridge made with milk (instead of water).
  • Peanut butter on toast.

Light meal or lunch:

  • Ham and/or cheese omelette.
  • Tuna mayonnaise sandwich.
  • Cheese ploughman's. 
  • Hummus and carrot.
  • Bean soup and grated cheese.
  • Baked beans on toast topped with cheese.
  • Prawn cocktail. 
  • Chicken sandwich.
  • Lentil/bean and nut salad.

Main meals:

  • Meat or chicken stew/casserole.
  • Sausage and mash.
  • Salmon filled.
  • Fish and chips.
  • Dahl.
  • Tofu stir-fry and noodles.
  • Cheese and tomato pizza topped with extra chees.
  • Spaghetti bolognaise and grated cheese.
  • Chicken breast.
  • Tuna pasta bake.
  • Macaroni cheese.
  • Vegetarian lasagna.
  • Bean chilli.

High protein snacks

Savoury options:

  • Sandwich with meat, cheese, or hummus.
  • Sausage roll or mini pork pie.
  • Slice of pizza or quiche.
  • Cocktail sausages.
  • Seafood sticks.
  • Scotch egg.
  • Boiled egg.
  • Eggy bread.
  • Individual cheese portion.
  • Cheese and biscuits. 
  • Tofu bites.
  • Cheese and onion pastry slice.
  • Chicken drumstick or chicken bites.
  • Falafel and hummus.
  • Nut butter and crackers.
  • Bombay mix.
  • Small handful of nuts.
  • Quorn ready roasted fillets.
  • Meat free sausages.
  • Meat free picnic eggs.
  • Vegan pasty.

Sweet options:

  • Egg custard tarts,
  • Custard.
  • Mousses/fruit fools.
  • Rice, semolina, or tapioca puddings.
  • Soya desserts.
  • Yoghurt.
  • Halwa. 

High protein drinks

  • Milk.
  • Hot chocolate.
  • Milkshake.
  • Supermarket milk drinks.
  • Soya drinks.
  • Yoghurt drinks, kefir, and lassi.
  • Soya drinks.
  • Ovaltine.
  • Cappucino.
  • Peanut punch.
  • Latte. 

Food labels

If you are buying a convenience meal, sandwich, or snack, it can be helpful to look at food labels to see how much protein is has. A main meal should have at least 20g protein, ideally more. 

Here is an example of a food label showing protein content: 

Food nutrition label with protein serving circled

How can I eat enough protein if I have a small appetite?

Try to eat small portions, but more often. Have 2-3 high protein snacks or high protein drinks in between your meals every day.  

For more information ask for a copy of our leaflet ‘Diet for a poor appetite.’

Try protein boosters to fortify your meals. The quantities of protein boosters given below are for 1 portion. You may be able to add more than 1 booster per portion. 

Protein booster portions

Food/DrinkProtein boosters.
1 pint full fat milk.Add 4 heaped tablespoons dried milk powder to make fortified milk.
Breakfast cereal, porridge,
custard, rice pudding.
Add 1 tablespoon dried milk powder, evaporated milk, ground almonds, chopped nuts.
Soups.

Add 1 tablespoon dried milk powder and/or ground almonds.

Add 2 tablespoons coconut milk.

Add cooked meat, chicken, lentils, or beans.

Sprinkle with 1 tablespoon grated cheese. 

Mashed potato.Add 1 tablespoon dried milk powder and/or grated cheese.
White sauces.

Add 1 tablespoon dried milk powder.

Blend in 1 tablespoon soaked cashew nuts or silken tofu.

Pasta dishes.Sprinkle with 1 tablespoon grated cheese.
Curries and stir-fries.

Add 1 tablespoon ground almonds or peanut butter.

Add 2 tablespoon coconut cream.

Add 1 tablespoon natural yoghurt after cooking.

Vegetable or bean dishes.

Add 1 tablespoon ground almonds, chopped nuts or peanut butter. 

Add 2 tablespoons coconut cream.

Add or sprinkle with 1 tablespoon grated cheese. 

Add 1 tablespoon natural yoghurt after cooking.

Tips

  • Aim to have high protein foods such as meat, chicken, fish, eggs, beans, lentils, nuts, or tofu at every meal.
  • Eat the high protein part of your meal first.
  • Have a generous portion of starchy food such as pasta, egg noodles, or quinoa to add more protein to your meal.
  • Try to have milky desserts such as yoghurt, rice pudding, or soya dessert after or between your meals.
  • Have high protein snacks between meals such as cheese and biscuits or falafel and hummus.
  • If you are buying ready meals check the label and aim for at least 20g of protein for a meal.
  • Have milk or soya drinks such as milkshakes or hot chocolate instead of tea, water, and squash.
  • Keep drinks separate from meals.

Do I need supplement drinks prescribed? 

  • If you are unable to eat enough protein, your dietitian may recommend nutritional supplements. These are available as milkshake style drinks, fruit juice style drinks, small ‘shot’ style drinks, desserts, or powders. Samples can be provided by your dietitian or they can be prescribed short-term by your GP. 
  • For more information ask of our leaflet/page with tips for taking nutritional supplements. 

How much protein do I need?

Different people need different amounts of protein. 
These foods all supply 1 protein portion. Most people having dialysis treatment need 6-8 protein portions per day. Some people find it helpful to plan their protein portions across the day. Your dietitian can tell you how many protein portions you need to eat each day, and can help you plan meals: 

  • 25g (1oz) cooked red meat, chicken or turkey.
  • 40g (1½oz) cooked or tinned fish.
  • 25g (1oz) cheese.
  • 200ml (⅓ pint) milk.
  • 125g / 1 small pot yoghurt or small portion custard or rice pudding.
  • 1 egg.
  • 100g (4oz) hummus.
  • 50g (2oz) Quorn.
  • 40g (1½oz) cooked tofu.
  • 110g (4oz) cooked pulses such as lentils, dahl or baked beans.

How can I eat more sustainably?

Many people want to eat food that is more environmentally friendly. Below are some ideas you could consider. 

  • Try buying plant food sources such as beans, lentils, soya mince, Quorn, tofu, or nuts.
  • When buying fish look for the Marine Stewardship Council or Aquaculture Stewardship Council symbols:
Marine Stewardship Council logo
Aquaculture Stewardship Council logo
  • Try calcium fortified plant milk such as soya or oat instead of cow’s milk.
  • Opt for wholemeal breads and wholegrain versions of pasta and cereals.
  • Choose local and seasonal produce.
  • Try to limit fruit and veg that have been flown from abroad. 
  • Avoid chopped, ready prepared and packaged fresh fruit, veg and salads if you can.
  • Reduce food waste, especially of fresh fruit and veg, by choosing tinned and frozen alongside seasonal fresh produce.

 

Useful webpages for further information

Information on kidney disease and food written by the kidney dietitians at North Bristol NHS Trust:
Nutrition and Dietetics Patient Information | North Bristol NHS Trust (nbt.nhs.uk)

Diet and lifestyle information including recipe books to download:
Living with kidney disease | Kidney Care UK

Webinar in importance of protein for people on haemodialysis:
Webinars on Kidney Health - patientwebinars.co.uk

Practical advice to help you reduce your weekly food shopping bill while keeping a nutritious and kidney friendly diet: 
Shop for a kidney friendly diet on a budget | Kidney Care UK

 

Contact your dietitian if you need further help. 

© North Bristol NHS Trust.  This edition published May 2024. Review due May 2027. NBT003617.

Caring for patients at the end of life

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The page has information about caring for your relative/friend at the end of life. 

The doctors and nurses looking after your relative/friend believe that there has been a change in their condition indicating that they are dying and are now in the last hours, days or weeks of life. This can be an extremely distressing and worrying time for everyone.

At North Bristol NHS Trust we want to be able to support you and your relative/friend as best we can. We are committed to providing high quality end of life care, which includes addressing pain and other symptoms, providing care in a way that ensures the privacy and dignity of your relative/friend, and by keeping everyone up to date about any changes in their condition or treatment.

Whilst the dying process is individual and we can’t always predict what will happen, there are some signs and symptoms that help us to recognise that someone is approaching the end of their life. This page aims to answer some of the questions you may have about your relative/friend’s care and what to expect when someone is dying.

What will happen next?

At North Bristol NHS Trust, we record the care given each day using a document called “The Purple Butterfly” framework which prompts staff to think about the individual needs of each person, ensuring that the most important aspects of care are addressed.  

Non-essential medications, routine tests, and observations such as blood pressure monitoring are reviewed and usually stopped at this time. Instead, any symptoms your relative/friend may experience such as pain, nausea, breathlessness and restlessness will be reviewed regularly and changes will be made to their care as needed. 

You and your relative/friend (if they are able) will be involved in the discussion regarding their care with the aim that you all fully understand the reasons why decisions are being made.

If your relative/friend’s condition improves then their plan of care will be reviewed and changed. All decisions will be reviewed regularly by the ward team. We will ask for the contact details of a named person so that we can keep you informed of any changes.

What documentation is used?

A symptom observation chart will be outside the room for staff to record any issues such as pain or distress that require intervention or medication from the doctors or nurses. The doctor will prescribe pain relief and other symptom-relieving medication on your relative/friend’s medication chart.

A purple butterfly sign will be placed on your relative/friend’s door as a way of communicating with all those involved in their care that they are in the last few days of life.

What can we expect during the dying process?

The dying process is unique to each person but in most cases there are signs which help to indicate that a person is dying, particularly when there has been a deterioration despite treatment in hospital. 

Diminished need for food and drink 

As someone becomes weaker and more unwell their appetite is likely to naturally reduce and eating and drinking become more difficult. Your relative/friend will be supported to take food and fluids if they so wish as long as they can safely do so; the treating team will guide you when this may no longer be possible.

Fluids via a drip are usually not needed when someone is dying, but it can be incredibly hard to see those we love not eating and drinking or receiving fluids. 

The nursing team can show you how to give mouthcare to your relative/friend to help relieve any sensation of dryness or thirst. We urge you to ask the medical team if you have any questions or concerns about food and fluids.

Changes in breathing

People who have suffered with breathlessness for a long time are often concerned that they will struggle with breathing at the end of their life. However, the effort of breathing may become easier as they become less active and the need for oxygen decreases. For others, their breathing may become more shallow and rapid and they may find the sensation distressing. Breathing difficulties can be made worse by feelings of anxiety and this is often relieved by knowing that someone is close at hand. There is also medication that can be given if we feel someone is experiencing distress with their breathing.

Sometimes people have a build-up of secretions in the back of the mouth which can cause a noisy rattle because they can no longer cough and clear the secretions. If this develops, your relative/friend may be given medication to reduce it and changes in position may help. Noisy breathing is not always improved by medication or a change in position and although it can be distressing to hear, it is not distressing for the dying person. 

Withdrawing from the world

This is a gradual process. Over a period of time, your relative/friend may spend more time sleeping and will often be drowsy when awake. This lack of interest in their surroundings is a natural process. Eventually they will lapse into unconsciousness, sometimes for a surprisingly long time.

When death is close their breathing pattern may change. It can sometimes appear more laboured and sometimes there are long pauses between breaths. This is normal and is not distressing to the dying person.

What else should we expect to happen during this time?

Medication and other treatments

Medication will be reviewed and anything that is no longer helpful may be stopped. New medication will be prescribed so that if a symptom occurs it can be addressed. Medication may be given as a small injection under the skin or as a continuous infusion using a syringe pump if it becomes difficult to swallow medication. If your friend/relative normally takes pain relief then this will be continued or given in an alternative way, usually via a syringe pump.

The staff will talk to you about the best way to maintain comfort by such things as looking at the position in bed, the use of a special mattress and mouth care. If your relative/friend is breathing through an open mouth, it is likely to become dry, so regular moistening and application of lipsalve will give comfort.

Spiritual, cultural and religious care needs

The team will wish to identify whether your relative/friend or you have any religious, cultural, or spiritual wishes, and if there are any particular things that may be important at this time. Please let staff know if you have any special requests or wishes relating to the moment of death or after death so that they can ensure that these are carried out .

You may be asked if either of you belong to a faith or community. If you do, you may wish for the staff to contact a faith leader from that community for support now or at the time of death.

You are welcome to meet a member of the hospital Spiritual/Pastoral Care Team (Chaplains phone number: 0117 414 3700). They are skilled people who can provide support even if you do not have a religious belief. They can be asked to visit and talk to you about any needs, fears, and worries.

How else can I help my relative/friend?

Don’t underestimate the importance of being with your relative/friend, even if you feel you aren’t doing much. Talking to your relative can help, even if they appear to be asleep. Telling them news from home, reading a book or the newspaper may be comforting to them, even though they may not be able to respond .

Please feel that you can hold your relative/friend‘s hand and touch them. 
It is sometimes possible to help with some simple aspects of care - moistening their mouth, providing them with a drink or brushing their hair, for example. Please feel free to speak with a member of staff if you are unsure or would like some guidance.

This is a difficult time. Do not forget to take care of yourself. Visiting can be a very stressful and tiring time. Do take breaks from the bedside, try to get some rest and eat well. There are quiet spaces available for you to use on the wards. Please ask the staff to show you where they are located.

What happens after my relative/friend has died?

The ward staff can go through this with you and there is a separate leaflet explaining everything that needs to happen.

What other support is there for me?

The Sanctuary / Chaplaincy

The Sanctuary is located at Gate 30 and offers a place for quiet, reflection, meditation, prayer, and worship. It is for people of any or no faith and is open for patients or visitors at any time. 

Purple Butterfly Volunteers. 

Our Purple Butterfly volunteers are available most weekdays to offer an extra layer of support to you and your relative/friend. They can sit and listen to you and your relative/friend, offer you refreshments and provide short periods of respite should you wish to take a break from being at the bedside. 

We can provide relatives/friends with a carers badge which allows access to the staff canteen (Vu, Level 5) giving you access to wider variety of hot food and drinks. The nursing team and Purple Butterfly volunteers can help you with this. 

For information about food and drink facilities in the Brunel building visit:

Cafes & Shops | North Bristol NHS Trust (nbt.nhs.uk)

Parking

Parking permits are available, please discuss this with the ward team. This will need to be taken to the security and parking office at the main entrance on Level 1 for authorisation.

Pay and display charges apply 24 hours a day, 365 days of the year. 

Parking Administrator Telephone: 0117 414 3335

Information/Communication

The team will be making regular assessments of your relative/friend’s condition. If you have any worries or concerns in between assessments, or at any time, please do not hesitate to let one of the doctors or nurses know. Being with someone at the end of their life can feel lonely and painful, so the staff are also here to offer you guidance, comfort and support.

If further support or symptom control is needed, the ward team will contact the Palliative Care Team:

Phone: 0117 414 0519 
Monday–Friday 9am-5pm

© North Bristol NHS Trust.  This edition published January 2024. Review due January 2027. NBT002815.

Preparation for your short stay hip replacement

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This information has been written by the teams who will look after you during surgery. It aims to help you understand the surgery, guide you through these various phases of your operation, and inform you how you can best prepare and recover afterwards.

You may be given a paper copy of this information which you should bring with you on the day of your surgery. 

This page contains the following information:

  • Preparing for your operation
  • On the day of your operation
  • Going home
  • Physiotherapy advice
  • Therapy advice

A joint replacement operation is done to improve your quality of life, It will hopefully allow you to do some of the things that have become difficult with your joint arthritis.

From the day you are admitted to hospital, the staff involved in your care will work together to assess your needs in preparation for leaving hospital. 

We ask you to provide us with all the necessary information that will help with planning your hospital care, and timely discharge as early as possible. 

You will need to make the arrangements for your own transport home prior to your admission. If you or your relatives/carers have any concerns about your hospital discharge or transfer, do not hesitate to ask a member of the team.

Discharge Lounge 

Where possible, discharge arrangements will be made so you are able to vacate your hospital bed. This may include transfer to the Discharge Lounge; we will prepare you and keep you informed.  

The Discharge Lounge is a safe area providing nursing care and regular refreshments and meals, including breakfast, where you can wait to be taken home.  

Pathway for recovery

Recovering from joint replacement surgery has changed a lot over the years. We know the sooner we get you up and walking after your surgery, the better your outcomes will be. To help you do this, we have developed a pathway using the expertise of other hospitals in this region and across the country. 

This should allow you to get back on your feet sooner and return home to do the things you enjoy.

Returning home as soon as safely possible, even on the same day as your operation

As a result of expert surgery and anaesthetics, and a highly skilled team of doctors, nurses, and allied health professionals, many patients will not need to stay in hospital overnight and will be ready to go home the same day.

This is the usual pathway in many orthopaedic centres across the country, providing an excellent standard of care with very positive results and patient feedback.

However, some patients may not be ready to return safely home the same day and will need a little longer. If this is the case, we would expect you to be able to go home the day after your surgery, or as soon as all treating teams are satisfied.

We will only discharge you once you are recovered and you are able to safely return home.

Managing and understanding the Process

It is important for you to have realistic expectations of having joint replacement surgery. You should have a clear understanding of what to expect at each stage. You must prepare appropriately for your surgery and work with the clinical teams you meet during your care.
 

Preparation for your operation

Prepare ahead

The weeks leading up to your operation are as important as the operation day itself.  

After your surgery, you will either return home on the same day, or stay in hospital for just one night. Therefore, you should plan ahead before your surgery and think about how things might be for you when you return home. You must also attend all your appointments before your surgery date.

Arrange for transport

You should arrange for a family member or a friend to collect you after your surgery. The hospital does not routinely provide transport for your return home. 

Assistance for after your surgery

You have probably been living with joint pain for some time before your operation and will already have ways of adapting to certain situations at home. However, when you are recovering from your operation you may also need some extra help with general tasks initially, like cooking, shopping, and cleaning. You must organise this help before your operation date.

To ensure that your return home is successful and safe, you will need to have someone to stay with you overnight post discharge, and for a few days after returning home. This is essential if you are to go home on the day of surgery. 

Care agency support

Very few people require professional care support at home. If your personal choice is to have this help, you must arrange this privately.
The NHS can only provide professional care based on specifically assessed needs and cannot arrange convalescent care.

Prepare your home

Preparing your home environment in advance is really helpful for when you get discharged.

For example, you can:

  • Freeze some simple to cook meals or have some ‘ready meals’ on hand.
  • Move any regularly used items that are heavy, or out of reach, to more accessible places, such as move the saucepans you use frequently up from any low shelves or cupboards.
  • Avoid potential trip hazards by removing any loose rugs or obstacles from the floor such as excess furniture or things that would be easy to trip over.
  • Make arrangements for someone to care for any pets including walking dogs after your surgery.

Keep fit and healthy

The fitter you are before your operation, the less likely you are to have complications during and after your surgery.

You should seek to make some lifestyle improvements, such as:

  • Reduce alcohol intake.
  • Stopping smoking.
  • Keeping as mobile as possible and exercising.
  • Losing weight.

If you have any long term health conditions, you should aim to control these as well as possible before your operation to help prevent any complications and to avoid your operation being postponed. 

Check your own blood pressure if you are able to do so or get it checked at your GP.  If it is above 160/90 you are likely to require medication and the sooner this is started, the sooner we will be able to go ahead with your surgery. 

Similarly, if you suffer from diabetes and your HbA1c has not been checked for 6 months or was over 69mmol/mol the last time it was checked, please arrange to have this checked again, and work with your diabetic adviser to improve it. It is very unlikely that your surgery will be undertaken if your diabetes is not well controlled and your HbA1c is above this value.

Pre-operative assessment

The pre-operative assessment process is important as it helps the hospital plan your care.

You will be asked by the hospital to provide some information about your general health and current medications. You may be asked to provide this information via:

  • A computer or mobile app.
  • A telephone consultation.
  • A video consultation.
  • A face-to-face appointment.

This allows us to inform and advise you about your procedure, for example, we can provide you with instructions about medications and fasting times before your operation. 

What details will be checked?

At your pre-operative assessment appointments, we will check various medical details, such as:

  • Your general health status.
  • Your blood pressure.
  • Your blood count to see if you are anaemic.
  • Your kidney functions.
  • How well you are controlling your diabetes.

Medicines

We will also review your medicines. It is fine to continue taking most medicines and to take them on the day of your surgery. However, there are certain medications we may need you to stop taking for a few days before your operation, such as:

  • Blood thinning / anti-clotting medication.
  • Some blood pressure medications.

We will give you clear instructions if this is needed and tell you when you should start these medications again after your surgery.

Ward staff will inform you of the pain relief that your surgical team have prescribed for you when you leave hospital. This discussion will also include advice about paracetamol and ibuprofen, where we advise patients to source their own supplies if they are able to do so, in line with North Bristol NHS Trust Policy.

Do your physiotherapy exercises

The exercises in the Physiotherapy section of this page should be completed both before and after your surgery.  Doing these exercises before your operation will strengthen your muscles and will help you to recover more quickly after surgery.

On the day of your operation

You will be given a specific time to arrive, depending on the time of your operation.

Eating and drinking before your operation

You must follow the instructions about fasting times. It is important that you follow the fasting instructions correctly or your operation may be cancelled on the day.  You must not have any food or very milky drinks for 6 hours before your surgery.

We encourage you to continue to drink plain water until you arrive at hospital and after your admission this will be provided according to your anaesthetist’s instructions. 

What to bring with you to the hospital

  • All your current medication in original packaging.
  • Wear loose, comfortable day clothes to get dressed back into after your operation. Your leg may be swollen after your surgery so make sure this is an appropriate size.
  • Flat, sturdy footwear with a back in it. No mules or sliders.
  • Overnight bag in case you are not ready to return home on the same day.
  • Glasses, hearing aids, walking aids, or dressing aids that you might have.
  • Phone, charger, headphones, music devices, if you would like to listen to music during your operation.
  • It is also a good idea to bring something to read or to keep you occupied in case you have a wait.  Wi-Fi coverage can be variable.
  • Contact details of the person who will be picking you up.
  • Any letters you receive from the hospital giving you arrival instructions for the day of surgery.

Please try to avoid bringing in a large number of items with you and minimise items of high value or cash.

Arriving at the hospital

When you arrive, you will be greeted by a member of the reception team.  They will book you in and confirm some details with you. You will then be seen by one of the nursing team who will run through some additional questions.

Confirming your consent form

The surgical team will confirm with you the operation that they are planning to perform, and check your consent form. They will use a pen to draw an arrow on the leg that is going to be operated upon. 

They will be able to answer any last-minute questions you may have.

Meeting your anaesthetist

Before your operation, you will meet your anaesthetist. They will explain the type of anaesthetic that is going to be used, and answer any questions you may have about the anaesthetic.

Getting ready for your operation

When it is time for your operation, you will be asked to change into a theatre gown. You will then walk to the operating theatre with one of the team. There, you will be greeted by your anaesthetist, and you will also meet the operating department practitioner, who works with the anaesthetist, helping to look after you.

Routine checks

Some routine checks will be carried out to confirm your identity and to check if you have any allergies.  We will confirm again your operation, and what side you are having it on. 

Attaching monitoring equipment and a drip

One of the team will attach some standard equipment to monitor your heart, blood pressure, and oxygen levels while you are having your anaesthetic and operation.

Your anaesthetist will also be giving you various medicines through a drip in the back of one of your hands. These include antibiotics, anti-sickness medicines and fluids.

Spinal anaesthetic

In most cases, your anaesthetist will give you a spinal anaesthetic. This is very safe, and avoids the need for having a general anaesthetic, which may cause unpleasant side effects.

Spinal anaesthetic also helps you to recover quickly and receive the best post-operative pain relief.

Local anaesthetic is placed around some of the nerves in your lower back. This numbs your pain nerves so that you do not feel pain during the operation. 

The operation

Once you are in the operating theatre, your leg will be painted with some cleaning fluid and then covered with drapes. You will not be able to see the surgery and the spinal block will prevent you from feeling any of the operation.

Some people find listening to music through their headphones to be a good distraction. It helps them to relax, and this will be offered to you. You may wish to bring your own music on your phone or portable music device, and your own headphones. Some people prefer to have a small amount of sedation so that they have a light sleep through their surgery. Your anaesthetist will discuss and agree with you a plan depending on your medical history, and your wishes. 

The operation typically takes about 1.5 hours.  During this time, your observations will be continually monitored by your anaesthetist.

After the operation

At the end of your operation, you will be transferred to the recovery area where the nurses will monitor your observations. You will be encouraged to eat and drink.

When your spinal anaesthetic has sufficiently worn off, you will be assessed by the therapy team. Our nursing and therapy teams will help you get up, stand, and practice walking with suitable walking aids. The team will practice with you getting on and off the bed, chair, toilet and give advice on how to dress. You will be encouraged to get dressed in home “day clothes” with supportive footwear (no mules or sliders).  You will also be taught how to safely complete the stairs. 

In order for you to return home, the team needs to be happy that you can manage these activities at home with walking aids. If you require any equipment to assist you this will be assessed and provided prior to your discharge.  Please bear this in mind when organising your transport home.
 

Going home after your operation

Returning home

Everyone reaches their post-operative goals at different times. This determines whether it is safe for us to let you go home on the same day as your operation, or if you need to stay overnight with us at the hospital. 

Arrange for someone to collect you

When you have been cleared for discharge, you can contact your family or friends to come and collect you from the hospital. 

Arrange for support at home

If you live alone you will need to arrange for a friend or relative to stay with you overnight, post discharge and for a few days after returning home. You should arrange this before you come in to have your surgery. 

Wound dressing

Your wound is covered by a shower proof dressing so you can shower as soon as you feel able but do not aim water directly at the dressing. You will be seen by a healthcare professional two weeks after your operation to have your wound checked. Please leave any dressings in place and keep as dry as possible until this appointment. 

Keep active after your operation

The sooner you can get up and walk after your operation, the better and faster your recovery will be. You will also have a lower risk of complications after your surgery. Keeping still after your operation tends to result in your leg swelling, which ends up making it even more painful to walk. This can cause more side effects, which requires more pain relief, resulting in a vicious circle. 

Pain control

Joint replacement surgery is painful – just like any other surgery. The first few weeks can be a difficult period. However, it is important to stay active and keep up with your movement exercises. We will be giving you strong pain relief medication. However, you should expect there to still be mild to moderate pain on movement. It is not going to be 100% pain free.

Arrows in a circle, the cycle of moving, reducing stiffness and swelling, less pain, and less medication and side effects.

The pain relief package you receive has been specially designed to try and control your pain as well as possible.  It starts from the day of your surgery and continues after your discharge home.  We will give you the same pain relief tablets whether you stay in hospital overnight or return home on the same day as your operation.

The pain relief package requires you to take your medicines at specific times.

Additional medications

We will be asking you to take additional medications to help minimise side effects, such as nausea or constipation. Other medications will be given to reduce the chance of certain complications, such as blood clots after your operation. You will be given clear information about the medicines you are sent home with, and when to take the doses. 

What to expect when you get home:

Swelling is common to have some generalised swelling of the leg below your hip replacement. Swelling will often get worse if you sit for prolonged periods, so we encourage you to remain gently active. To help reduce lower limb swelling you may need to rest for at least 20 minutes in the morning and / or afternoon on the bed initially. If you experience increasing swelling and pain, please seek medical advice.

Constipation is usually due to the pain relief medication you are taking. We will give you some laxative medication as part of the routine pain relief package. However, please ensure that you take these as prescribed, along with plenty of water to drink. Keeping mobile will also help reduce symptoms. If you struggle, then please discuss this with your GP. 

Pain is the biggest issue. It is something you should expect after your operation, but it is key that you do not stop doing your exercises. Please make sure that you follow the pain management programme you were discharged with to help control your pain. 

Sleepless nights: It is common for people to experience some disturbance in their normal sleep pattern in the first few weeks after an operation. Please do not worry as this usually improves with time. You can sleep in any position including lying on either side. 

What to look out for

Deep vein thrombosis (or DVT) Blood clots in the leg can occur after joint replacement surgery. If your leg becomes hard, swollen, hot and painful, especially in the calf area then this could be a sign of a blood clot. Please seek medical advice if you get these symptoms.

Infection is very rare. However, if your joint replacement or scar becomes hot, red and / or increasingly swollen or if you feel unwell, then please do seek medical assistance. 

Support after discharge

The Ward team will let you know what arrangements have been made for your follow-up appointments.

Following your discharge from hospital, there is always someone you can contact for advice. 

If you would like more information before your operation or have any questions after you have been discharged home or concerns about your wound, please ring 0117 414 1331 and one of the nursing staff will be able to advise you directly or be able to contact people from your surgical team for you.  

For therapy related queries, please contact Physiotherapy admin 0117 414 4412 or Occupational Therapy admin 0117 414 1272
 

Physiotherapy advice

Completing the exercises on the following pages will benefit your recovery, improve movement in the hip joint and develop the strength of muscles around it.

These exercises should be completed before and after your surgery. Doing these exercises before your operation will benefit your recovery.

We recommend you continue these exercises for a minimum of 6 weeks post-surgery. Complete your exercises 3 to 4 times a day, repeating each exercise up to 10 times.

Bed exercises 

To watch a video of exercises to do in bed visit: 

Hip replacement - bed Exercises (youtube.com)

Ankle pumps 

Lying on your back, point your toes up and down for the count of ten. Repeat every hour you are awake.
The aim of this exercise is to improve the circulation in the lower limbs, helping to prevent the formation of deep vein thrombosis (blood clots) and reduces swelling.

 

Ankle pump exercise

Knee bracing (static quadriceps)

Lying down on your back with your legs straight.
Pull your ankle up towards you and push the back of your knee down against the bed.
Hold for 5 seconds, then relax.
Repeat 10 times.
The aim of this exercise is to strengthen your thigh muscles ready for standing and walking.

Knee bracing exercise

Heel slides (on sliding sheet)

Lying down on your back with your legs straight.  
You will need assistance to place sliding sheet under your heel.  
Bend and straighten your hip and knee by sliding your foot towards your body and then away.
Repeat 5 – 10 times.
The aim of this exercise is to increase your hip movement.

Heel slides exercise

Hip abduction (on sliding sheet)

Lying down on your back with your legs straight.
You will need assistance to place sliding sheet under your heel.
Slide your leg out to the side and back in.
Repeat 5 – 10 times.
Do not bring your leg back over your body’s midline.
The aim of this exercise is to increase your hip movement and strengthen the surrounding muscles to help with walking.

Hip abduction exercise

Bridging

Lying down on your back with your knees bent and feet flat on the bed.
Tense your tummy and bottom muscles and lift your bottom up off the bed.
Hold for 5 seconds. 
Repeat 5 – 10 times.
The aim of this exercise is to stabilise your pelvis during walking.

Bridging exercise

Standing exercises 

To watch a video of exercises to do while standing visit: 

Hip replacement - standing hip exercises (youtube.com)

Hip flexion in standing

Bend your hip and knee up in front of you and lower back down.
Repeat 5 – 10 times.
The aim of this exercise is to strengthen your muscles at the front of your hip.

Hip flexion when standing exercises

Hip extension in standing

Keep your leg straight and take it behind you.
Try not to bend at the hips or knee.
Try to stand up tall.
Repeat 5 – 10 times.
The aim of this exercise is to strengthen your bottom muscles to help with walking.  

Hip extension when standing exercise

Hamstring curl in standing

Lift your foot off the floor behind you, bending your knee.
Try not to bend at the hips.
Repeat 5 – 10 times.
The aim of this exercise is to stretch the muscles at the front of your hip and strengthen your muscle on the back of your leg.

Hamstring curl standing exercise

Hip abduction in standing

Keep your leg straight and take it out to the side.
Try not to bend at the knee. 
Repeat 5 – 10 times.
The aim of this exercise is to strengthen your bottom and hip muscles to help with walking.   

Hip abduction standing exercise

Mini squats

Bend both your knees, pushing your bottom out behind you.
Keep your knees behind your feet.
Repeat 5 – 10 times.
Do not bend your hip more than 90 degrees.
The aim of this exercise is to strengthen your leg and hip muscles.

Mini squat exercise

Calf raises

Raise up onto your toes on both feet.
Lower back down onto your flat feet.
Repeat 5 – 10 times.
The aim of this exercise is to strengthen your calf muscles.

Calf raise exercise

Walking

Following your operation, you will be encouraged to get up and walk. It is important to walk on a regular basis and to steadily increase the distance as you recover. It is normal to be allowed to put full weight through your operated leg. 
As soon as possible, try and walk placing one foot past the other in a normal walking pattern. You can progress to using one crutch or a stick held on the side opposite to your operated leg as soon as you feel safe and comfortable to do so. If you are uncomfortable or if you limp when walking, continue to use your walking aids. 

Stairs

The therapist will practice with you how to safely complete the stairs before going home. To go up and down the stairs, use a banister rail if there is one.

Go up leading with the unoperated leg first, followed by the operated leg and then the crutch.

Standing on step
Going up stairs

Going down, put the crutch on the step below then step down with the operated leg, followed by the unoperated leg.

Therapy advice

Activity

Walking is good for your new hip but remember your hip is an artificial joint. Pace your activity, walk and exercise regularly, little and often. The risk of dislocation is greatest in the first six weeks following surgery. To reduce the risk of dislocation whilst the tissues around your hip are healing, avoid forcing or overstretching movements. Avoid the combination of bending the hip and knee across the body towards the opposite shoulder as shown in the picture below.

Image of leg and hip movement to avoid

Sleeping

You may sleep in any position including lying on either side. Initially when you lie on your non-operated side it may be more comfortable with a pillow between your legs to support the operated hip. When getting into bed, position your bottom back towards the centre of the bed and then slide yourself around into bed lifting your legs onto the bed. 

Sitting

Sit in a comfortable supportive chair after your operation (ideally with chair arms) to help you get up and down safely. Avoid low soft seating initially after your operation. 

Getting dressed

To put pants or trousers over your feet, hold the waistband and lower garment to your feet, inserting the operated leg first followed by the other leg before pulling them up. 

To undress, complete in reverse. When putting on shoes and socks, reach down on the inside of the operated leg to avoid uncomfortable twisting of your hip. A long handled reacher, shoehorn and sock aid can make dressing easier. These are readily available from mobility shops, pharmacies and online.  

Relationships

It is normal for your sex life to change initially following a joint replacement. Sexual intercourse may be resumed when you feel comfortable.

Driving

You can travel as a passenger in a car immediately following your operation. 

  • It is best to sit in the front seat, have someone move it well back and reclined
  • If possible, get into the car directly from the drive or road rather than the kerb or pavement
  • Use your arms to lower yourself onto the edge of the car seat
  • Keep your operated leg straight and out in front of you
  • Slide back into the seat
  • Lift both legs in as your body turns to sit upright in the seat.
Getting out of a car
Getting out of a car

You can usually resume driving around four to six weeks after your operation.  Stop regularly on longer journeys so you can get out of the car to change position and move around.  You must be safe to drive and be able to do an emergency stop.

We recommend that you inform your insurance company you have had a hip replacement before you start driving. 

Returning to full activities

Most people are ready to return to work at six to eight weeks after their operation. Air travel should be avoided whenever possible for the first six weeks. Depending on the sensitivity of the security scanner, your hip replacement may set off the alarm. 

You can resume most physical activities as soon as you feel comfortable and confident. You can swim once your wound has healed, swimming any stroke including breaststroke. Exercise bikes and treadmills can be used from six weeks, returning to outdoor cycling once comfortable. If you play golf, we suggest you can resume gradually after six weeks.

For activities such as tennis, badminton and cricket we suggest resuming from around 3 months. 

Contact sports are not advised following this surgery.

Equipment

The walking aids and any equipment prescribed to you after your surgery are provided by an equipment supplier. Please ring the number on the sticker on the equipment, to discuss its return.

© North Bristol NHS Trust.  This edition published April 2024. Review due April 2027. NBT003678.

ME/CFS and Long Covid financial and social care advice

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Financial and social care advice  

The Bristol M.E. Service recognises the impact that ME/CFS and Long Covid can have on people’s ability to work and therefore on their finances.  We cannot advise you directly about finances and accessing benefits as this is a specialised area, but we can help you with:   

  • confirmation of diagnosis and that you are being helped by a specialist team.   
  • an outline of your functional ability and how that varies due to post exertional malaise.   

These two key areas can both be included in our standard clinic letters.  However, if you need to appeal a decision regarding your benefits and there is a request for further information, we can write a letter for you to add this appeal. This can include more information about the condition, the therapy approach that we offer and an outline of your functional ability.  

People we support might apply for: 

Personal Independence Payment (PIP) https://www.gov.uk/pip

Employment and Support Allowance (ESA) https://www.gov.uk/employment-support-allowance

Universal Credit (UC) https://www.gov.uk/health-conditions-disability-universal-credit

Carer's Allowance https://www.gov.uk/carers-allowance

 

Specialist support

We advise that you contact specialist support to establish which benefits you can apply for, and have some help in completing the application forms.  Here are some of the places that can offer this:

Citizens Advice Bureau https://www.citizensadvice.org.uk/

North Bristol Advice Centre https://northbristoladvice.org.uk/

Bristol Law Centre  https://www.bristollawcentre.org.uk/

Bristol Law Centre provides skilled assessment, triage & signposting for social welfare legal issues. They may be able to offer free legal advice & casework, depending on capacity, funding and your circumstances.  If they can’t help you, they will always give you information on your options. For free legal advice if you live in Bristol and beyond. The Centre can help with housing issues, welfare benefits, discrimination and other disputes at work, mental health tribunals and Court of Protection, immigration and asylum, family disputes and tribunal appeals. 

Charities: Action for M.E. and the M.E. Association  

The M.E. charities also support people with Long Covid and provide up-to-date information on benefits and advice on how to complete the forms. 

The M.E. Association guides to benefits: https://meassociation.org.uk/free-literature-downloads/

Action for M.E. guide to welfare benefits: https://www.actionforme.org.uk/get-information/care-and-support/welfare-benefits/

Social care and adaptive equipment   

You will need to contact the social services department you live in, which is provided by the council that you pay your council tax to.  There will be a number you can call or a weblink to apply for help. 

Bristol City Council https://www.bristol.gov.uk/residents/social-care-and-health

North Somerset Council https://n-somerset.gov.uk/my-services/adult-social-care-health

South Gloucestershire Council https://beta.southglos.gov.uk/health-and-social-care/

Gloucestershire County Council https://www.gloucestershire.gov.uk/health-and-social-care/adults-and-older-people/

Other help can be provided by the Red Cross, who are able to offer short-term support https://www.redcross.org.uk/get-help/get-support-at-home

Mobility aids and wheelchairs

We can offer advice about the potential benefits of mobility aids. Please ask your clinician if you would like to discuss this. The NHS web pages about mobility aids are a helpful guide: https://www.nhs.uk/conditions/social-care-and-support-guide/care-services-equipment-and-care-homes/walking-aids-wheelchairs-and-mobility-scooters/

If you want a short-term wheelchair loan, the Red Cross offer a rental or hire service. 

Rent or hire a wheelchair: https://www.redcross.org.uk/get-help/hire-a-wheelchair

To access an NHS wheelchair for regular use please ask your GP for a referral. 

You could also search the Internet for mobility centres as there are a number in the area, for example:

The Bristol Mobility Centre https://www.bristolsmobilitycentre.co.uk/

Ableworld Gloucester https://gloucester.ableworld.co.uk/

Trust Board Meetings 2024/2025

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Members of the public and staff are able to attend our Trust Board meetings in public. If you would like to attend, please let us know by emailing trust.secretary@nbt.nhs.uk and we can provide details of the location, and print papers if required. If you wish, you can ask a question to the Trust Board.

The Trust Board meets in public at 10am.

  •  Thursday 30 May 2024
  •  Thursday 25 July 2024
  •  Thursday 26 September 2024
  •  Thursday 28 November 2024
  •  Thursday 30 January 2025
  •  Thursday 27 March 2025

Download Integrated Performance Reports (IPR):

Download Meeting Papers:

Use of immunoglobulin (IgG) in antibody deficiency

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This information is for patients who have been referred to receive regular replacement antibody therapy using immunoglobulin (IgG). This page tells you about the treatment, including risks and benefits, and where you can obtain further information.

What is immunoglobulin?

Immunoglobulin (IgG) is a fluid containing antibodies, (proteins produced by the immune system), that help protect against infection. It has been available for the treatment of antibody deficiency syndromes for more than 30 years. It has been proven to be a very effective and well tolerated treatment. IgG is extracted from blood derived from donor pools of at least 10,000 individual blood donors.

How safe is it?

There is an extremely small risk that some bloodborne infections may be passed on through the use of  immunoglobulin.

Immunoglobulin products have been prepared from fully tested blood and have also been treated during manufacture to destroy blood-borne agents known to cause infection. However the risk of blood-borne infection cannot be completely eliminated. No recipients of IgG have contracted HIV or CJD (the human form of mad cow disease). No proven cases of hepatitis C have been identified since the mid 1990s, when the manufacturing process was altered to include elimination of this virus.

What are the benefits?

There is very strong clinical evidence that if you are not treated with IgG you are likely to have recurrent infections, which may lead to tissue damage, including long-term chest complications. 

Are there any side effects? 

As with all medicines there is a small chance of side effects. However, immunoglobulin has a good safety record. Adverse reactions may be categorised as mild, moderate or severe.

  • Mild reactions usually occur within 30 minutes of the start of the infusion and include headache, flushing, chills, backpain, or muscular aches.
    Reactions are experienced by up to 10 in 100 patients, typically lasting a few hours. These reactions can often be prevented by the use of simple medicines, paracetamol and/or anti-histamine before starting your infusion and ensuring that the infusion speed is not too rapid.
  • Severe allergic reactions are very rare and typically happen within seconds or minutes of beginning the infusion. Symptoms may include itchy skin rash, swelling of the face and throat, difficulty in breathing, dizziness or fainting and even collapse. This will be discussed with you before you start treatment.

How do I receive it? 

  • Your medication can be transfused into a vein like a blood transfusion over 1-3 hours, and then repeated every 2-4 weeks.
  • It can also be given subcutaneously (under the skin), on a more frequent basis, usually weekly.
  • Your therapy will initially be given in hospital, after which time you may choose to be trained to give your own treatment at home. This will be discussed with you on an individual basis. 

Your treatment will probably be life-long. 

Will I need any blood tests?

You will be asked to have regular blood tests to monitor your IgG levels. The dosage and frequency of treatment may then be adjusted as necessary. Failure to achieve acceptable IgG levels can lead to recurrent infections. 

It is also normal practice to store small samples of your blood at the start of your treatment and before any change of product. Should any blood-borne infections occur this will enable us to determine whether it is related to your infusion.

Where to get further information and advice

Further information is available from the manufacturers of the individual IgG product. (The name of the manufacturer can be obtained from your clinician).

Safety and adverse reactions information

Brennan V.M, Cochrane S, Fletcher C, Hendy D and Powell P (1995) Surveillance of adverse reactions in patients self infusing intravenous immunoglobulin at home. Journal of Clinical Immunology, 15, (2) 116-119.Campbell J (1997) Anaphylaxis. Professional Nurse, 12, (6) 429-432.

Hammarstrom L and Smith C.I.E (1986) Anaphylaxis after administration of gamma globulin for hypogammaglobulinaemia. The New England Journal of Medicine, 315, (8) 519. 

RCN Community Nursing Association (1995) Anaphylaxis. Guidance for Nurses, Midwives and Health Visitors. Revised edition. London: RCN.
Stangel M, Hartung H-P, Marx P and Gold R (1997) Side effects of high dose intravenous immunoglobulins. Clinical Neuropharmacology, 20, (5) 385-393.

Unsworth J.D and Wallington T.B. (2001) Practical Transfusion Medicine: Use of Intravenous Immunoglobulin. Blackwell Science. Ed. M.F. Murphy and Derwood H Pamphilon.

A.J Wills, D.J Unsworth (1998) A Practical Approach to the Use of Intravenous Immunoglobulin in Neurological Disease. Emergency Therapies in Neurology, 39, 3-8.

Subcutaneous Immunoglobulin 

Gardulf A, Hammerstrom L and Smith C.I.E. (1991) Home treatment of hypogammaglobulinaemia with subcutaneous gammaglobulin by rapid infusion. The Lancet, 338, 162-166

Gardulf A, Anderson V, Bjorkander J et al (1995a) Subcutaneous immunoglobulin replacement in patients with primary antibody deficiencies: safety and costs. The Lancet, 345,(8946), 36-369.

Gardulf A, Anderson V, Bjorkander J et al (1995b) Lifelong treatment with gammaglobulin for primary antibody deficiencies: the patients’ experiences of subcutaneous selfinfusions and home therapy. Journal of Advanced Nursing, 21, 917-927.

Gaspar J, Gerritsen B and Jones A (1998) Immunoglobulin replacement treatment by rapid subcutaneous infusion. Archives of Diseases in Childhood, 79, (48) 51.

Remvig L, Anderson V, Hansen N.E and Karle H (1991) Prophylactic effect of self-administered pump-driven subcutaneous IgG infusion in patients with antibody deficiency: a triple-blind cross-over study comparing P-IgG levels of 3 gl-1 versus 6 gl-1. Journal of Irrational Medicine, 229, 73-77.

NHS Constitution. Information on your rights and responsibilities. Available at:
www.gov.uk/government/publications/the-nhs-constitution-forenglan

© North Bristol NHS Trust. This edition published March 2024. Review due March 2027. NBT002304.


 

Induced laryngeal obstruction test

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This page contains information for patients who have been referred for an induced laryngeal obstruction test.

Illustration of laryngeal anatomy

Why do I need this test?

This test is required if your doctor thinks that you may have inducible laryngeal obstruction.  This means the vocal cords and/or structures

 around them become narrowed as a response to triggers, such as perfumes, dust, cleaning products or exercise.  

Symptoms that may suggest you have this condition can include breathlessness, noisy breathing, wheeze, cough, or changes in your voice.

Before the appointment

Phone the Respiratory Physiology team before your appointment if you have experienced any of the following:

  • Head, eye, mouth, chest, or abdominal surgery in the last 2 months. 
  • A chest infection, diagnosed by a medical professional, in the last 2 months.
  • A heart attack/stroke that occurred in the last 2 months.
  • A blood clot in your lung.
  • Coughing up blood in the last 2 weeks

What do I need to do on the day?

  • Do not drink any alcohol before testing.
  • Eat only a small meal.
  • Do not complete any strenuous exercise at least 30 minutes before your appointment.
  • Avoid potential triggers related to your symptoms.
  • Do not apply body lotions before the test.
  • Take all of your usual medications as prescribed before the test.

What do I need to bring?

You should bring your appointment letter.

If possible, you should bring the trigger/s of your symptoms. If they cannot be brought, then just phone our department on the number provided at the end of this leaflet. 

If you are being tested for exercise induced symptoms then exercise equipment will be provided – please bring clothes suitable to exercise in.

What happens during my appointment?

When you arrive in the Brunel building, please go to Gate 12 and check yourself in at the reception desk. When your name appears on the television screen, go to the Respiratory Physiology waiting room.

You will be invited into the testing room where you will have the chance to ask any questions and the details of the test will be explained to you. 

A simple breathing test will then be performed, and your oxygen levels measured by an oximeter being placed on one of your fingers. 

A thin tube with a small camera will be gently placed in and through your nose so your throat can be observed. A helmet will be placed on your head to hold the camera in place. If you are being tested for exercise-induced laryngeal obstruction, then stickers will also be placed on yourchest to look at your heart rhythm throughout the test.

The physiologist and doctor will then safely expose you to the symptom trigger in a controlled manner, while observing your vocal cords via the camera. 

What happens after my appointment?

After the test, we will inform you of the results and discuss a plan. This will be communicated to your GP via a letter, and you will receive a copy. 

Who can I contact for any queries or concerns?

If you have any problems or concerns about coming for this test or are going to be late, please do not hesitate to contact us:

Respiratory physiology team
Phone: 0117 414 5400

We are happy to talk to you about any issues or concerns you have about your appointment.

© North Bristol NHS Trust. This edition published April 2024. Review due April 2027. NBT003263. 

Information about lung nodules

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This page contains information for patients who have/may have a lung nodule.

I’ve been told I have a lung nodule, what does this mean?

A lung nodule is a very small area of round shadowing, like a “spot” or “blob”, seen on a CT scan. Nodules are 3cm (1 inch)or less and do not cause any symptoms.

You may have several nodules. This is not always more serious than just having one.

How common are lung nodules? 

  • About 1 in 4 (25%) older people who smoke or who have smoked have nodules.
  • About 1 in 10 (10%) people who have never smoked may have nodules.
  • Nodules may be caused by scarring from lung infections.
  • They are common in people who have had TB in the past.

Are lung nodules cancerous? 

Most nodules are benign (non-cancerous). In a very small number of people the nodule could be an early lung cancer.

How can we find the cause? 

It is not always easy to know the cause of a nodule from just one CT scan. Because they are very small, doing a biopsy on them (taking a piece of the nodule out and examining it) can be difficult or risky.

Do all nodules grow? 

No. Benign (non-cancerous) nodules usually do not grow but cancerous ones will eventually get bigger. The best way to assess them is to repeat the CT scan after a period of time.

Even if your nodule does grow, monitoring them with repeat CT scans will allow your doctor to pick up any changes early and arrange further tests before the nodule causes symptoms or problems.

How will I get my results? 

Your CT result will be sent to your hospital consultant, usually within 4 weeks of your scan. Your consultant will then get in touch with you to let you know the result, either via a phone call, a letter, or a clinic appointment.

What happens next? 

Nodules are usually followed up for between 2 and 4 years, with CT scans every 3, 9, or 12 months. 

  • If your nodule is stable over several years, you will be discharged.
  • If your nodule grows or changes at all, your consultant may arrange for you to have more tests. This could include a special scan called a PET scan, or a biopsy.
  • If you develop any symptoms in your chest, please contact your GP. It is very unlikely that these symptoms will be caused by your nodule, but it is important to let your GP know anyway 

If I have any questions, who do I ask? 

Your GP will be kept fully informed of your progress and scan results. You should also receive a copy of all letters from your consultant. If you have any questions in the meantime, please contact the Lung Navigator at North Bristol NHS Trust.

NBT Lung Navigator
Phone: 0117 424 0654

© North Bristol NHS Trust. This edition published March 2024. Review due March 2027. NBT003679.