Soon after you arrive in hospital, we will discuss and plan with you how you will be able to leave hospital at the earliest appropriate opportunity. 

We can involve your carers, family, and/or friends in these conversations if you would like. They will be asked to advise what they may be able to do to support you both in preparation for discharge once you are home.

As soon as you’re admitted you will be given an “expected date of discharge.” This is the date we expect you will leave hospital and you will be updated if this changes. 

You are likely to move wards whilst you are with us- we will do all we can to make this a smooth process. This may include moving to other buildings on the Southmead site such as Elgar Re-enablement Unit or Cotswold ward.

Staying active in hospital can help you return home more quickly and help prevent loss of strength and independence (this is known as deconditioning).

• Communicate with the ward team: let them know your normal activity levels and ask how they can support you to stay active.
• Move around: walk to the bathroom and around your room, this can be alone or with help if you need it. Ask your family/friends to bring in your usual toiletries.
• Sit up for meals and visitors: sit in a chair or at the edge of your bed during meals and when you have visitors.
• Exercise gently: do gentle exercises throughout the day. 
• Do small amounts and often: to avoid you getting tired.
• Dress in your everyday clothes: If possible, wear your regular clothes during the day. Ask your family/friends to bring them in for you, along with your usual footwear.
• Actively participate in discharge planning: Stay involved in planning your discharge and share your thoughts with us.

On the day of your discharge, you will be provided with a discharge summary, which will also be sent to your GP, and the medication you need when you leave. The ward staff will explain your medication and you should read the written instructions on the packaging which tell you how to take it. This includes how often and at what time. Your GP will be able to prescribe more medication is needed.

As early as possible on the day of your discharge, you can expect to be transferred to the Discharge Lounge. This could be as early as 7am. Staff will work closely with the ward teams, pharmacy, and the person collecting you to make sure you safely depart from hospital.

In the Discharge Lounge, the final parts of your care will be provided by the nursing team, including giving you medications, snacks and drinks. You will have access to a television, radio, and garden area.

Some people may leave directly from the ward and you will be told if this is what will happen to you. This may happen if you are discharged later in the evening.

Where possible, we will help you to get home as early as possible, so please ask your family and friends to make sure everything is ready for your arrival, including having food available. If this isn’t possible, we will ask Voluntary Services colleagues to help.

If you need support from community services, this will have been agreed before you are discharged, and they will visit you at home. If you require a follow-up appointment or investigation, we will arrange this and send you a letter with the details.

If you are being transferred to a community bed, the process is the same as returning home, except that hospital transport will be arranged for you.

The location of your community bed will be shared with you as soon as possible before you are discharged.

Your GP

Help with non-emergency illnesses or injuries.

NHS 111 

Help if you have an urgent medical problem and need to get advice and treatment.

Sirona Care and Health

For adult’s and children’s community health services in Bristol, North Somerset, and South Gloucestershire. 
0300 125 6789 
Home - Sirona care & health (sirona-cic.org.uk)

Age UK Bristol

Working in the community to support older people, their families, and carers. 
0117 929 7537 
Age UK | The UK's leading charity helping every older person who needs us

Alliance NS

Providing housing related support to the North Somerset community. 
0300 012 0120 
Alliance Homes: Alliance Homes Homepage

Southern Brooks SG

Providing community support in South Gloucestershire. 
0117 403 4238
Southern Brooks Community Partnerships – We’re a community development organisation, which brings people together to build strong communities

Councils and local authorities

For information and support for adult care in your area. 

Bristol City Council: 

0117 922 2700
Bristol City Council 

South Gloucestershire Local Authority: 

0145 486 8007
South Gloucestershire Council (southglos.gov.uk)

North Somerest Council: 

01934 888 888
Home | North Somerset Council (n-somerset.gov.uk)

The adult Renal Service is located in the Brunel building at Southmead Hospital, on Level 1, Gate 5 (to the left of Costa Coffee as you walk in from the main building entrance).

The Renal Service is made up of a number of wards and units: the outpatient department, daycase unit, peritoneal dialysis training department, haemodialysis unit and Gate 8b. There are also satellite dialysis units spread across the South West.

When we say ‘transition’, we mean all the planning that happens when a person moves from paediatric to adult services. The aim of the transition process is to ensure you, the people close to you and your doctors are all ready for the switch.

There is no set time when it has to happen. Instead, your doctors and nurses will decide with you when the time feels right for you to move to the adult service.

Most young people will have their first clinic appointment with Dr Anjali Menon, Consultant Nephrologist, in the transition clinic. This clinic allows more individual time for you to get to know the staff and workings of the outpatients department.

Maria Langdon and Lisa Tierney, Specialist Nurses, attend most of these clinics and are available to contact with questions around your medical care. You will find their number at the back of this leaflet.

Alison Jenkins, Renal Young Adult Support Worker, also attends these clinics and is able to signpost you to services available to support you.

If you have had a transplant you will then attend the Renal Transplant Clinics (Monday, Wednesday, or Friday mornings). These are busy clinics and to make best use of your time, it is helpful to write a list of things you want to discuss to take with you to appointments. 

We recognise that the move from the children's to the adult service can be difficult and hope that having your own clinic will make the transition easier for you and your family. In response to this, over the last few years, we have set up clinics within the renal service specifically for young adults aged 16-25. These clinics also offer the opportunity to meet other young people with kidney conditions.

In Bristol the clinic runs four times a year with Dr Menon the Renal Consultant, a specialist Renal Registrar, Specialist Nurses Maria Langdon and Lisa Tierney, a Young Adult Support Worker, renal dietitian, and psychologist support.

The Renal Outpatients Department is at Gate 5, level 1 of the Brunel building. The Outpatients Department provides people with a kidney problem support and information about their condition. Routine tests can also be carried out here, such as height, weight, blood tests, and electrocardiograms (ECGs).

Clinics are here from 8.30am to 6pm on Monday to Thursday and from 8.30am to 2.30pm on Friday.

During your visit you will meet a number of team members, including doctors, nurses, dieticians, diabetic specialist nurses, transplant coordinators, clinical psychologists, and members of the patient education team.

The Renal Service is committed to research and has partnerships with several other organisations, such as the University of Bristol. From time to time you may be asked if you would like to participate in studies which may be going on within the service. If you don’t want to take part in research it is important that you feel able to say so and know that this will not have any impact whatsoever on the care you receive from the service.

From time to time you may need to be admitted to hospital because of your kidney problem. This will usually be to Gate 8b, which is on Level 4 of the hospital. If this gate is particularly busy you may occasionally need to be accommodated in another gate within the hospital. However, the renal doctors will always know where you are.

When in hospital you will be treated by consultant doctors, specialist registrars and senior house officers (junior doctors).Consultants do ward rounds twice a week, and if you or your family wish to see a consultant at other times, ask the nursing staff or make an appointment through the consultant’s secretary. You can often request to see specialist registrars and junior doctors on the gates. There might be a wait before they can see you.

Visiting hours are from 12pm to 8pm. If you need to have visitors outside of these times this could possibly be arranged by discussing it with ward manager. It may be possible for family members to stay overnight if agreed with the ward manager.

The Renal Dialysis Unit (RDU) is on Level 1, Gate 5 of the Brunel building at Southmead Hospital. The unit provides outpatient dialysis treatment to patients who live in the local area and people who need a doctor nearby whilst receiving dialysis.

The Unit has 15 dialysis stations and is open from 7am – 2am Monday to Saturday. There are 3 sessions per day: morning (7am – 2pm), afternoon (1pm – 7pm), and twilight (6pm – 2am) shifts. The Unit is closed on Sunday. Each patient has a named nurse allocated who has responsibility for their overall care on dialysis. Each dialysis station has a comfortable electrically operated chair.

Shared and Self Care is encouraged in the dialysis units you may like to take part in some aspects of your dialysis and go on to become independent in haemodialysis in a unit. The nurses will help you get to the level you want.

Satellite Haemodialysis Units

Satellite units are haemodialysis centres located away from the main hospital renal unit. They are managed by haemodialysis nurses. The six Satellite Units located in the Bristol/Bath area are:

• Cossham Satellite Dialysis Unit.
• Bath Satellite Dialysis Unit.
• Bright Satellite Dialysis Unit (on Southmead Hospital site).
• South Bristol Satellite Unit.
• Frome Satellite Dialysis Unit.
• Weston (Ambleside) Satellite Dialysis Unit.

The Community Team

Many people prefer to have their dialysis in their own home. We are able to offer people home treatment with haemodialysis and peritoneal dialysis. These home treatments are supported by the Community Care Team.

Jude Cornelius and Abi Bugler, Patient Education Nurses, are based within the Community Care Team and coordinate the patient information that is available in the department. They also provide information for people who may need dialysis treatment and help people to prepare for dialysis.

The Medical Day Care Unit is where short medical procedures, such as blood or iron transfusions, are carried out. It is on Level 1, Gate 5b of Southmead Hospital.

There is also a CAPD (Continuous Ambulatory Peritoneal Dialysis) training room situated on Level 1, Gate 8b (opposite medical day case).

As long as you are well, it is important to keep as fit as possible so that you have enough energy to live life to the full. Regular exercise will lower your blood pressure and reduce the risk of heart problems later in life.

We recommend that you avoid contact sports where you could get hit in the abdomen, such as rugby or judo.

If you are really keen on a particular sport, please talk to the team before you start doing it so we can check that it is safe for you to do.

You can speak to the renal dieticians on 0117 414 5428 if you have any questions about specific foods to avoid or eat more of.

It goes without saying that smoking is not a healthy choice. Smoking damages not only your lungs but also your heart and blood vessels. People with kidney failure are already at risk of heart and blood circulation problems so smoking will increase this risk.

If you would like support to think about not smoking, please speak to the renal staff as there is a lot of practical advice and support we could direct you to.

Sponsored by Kidney Care UK, the Young Adult Activity Weekend takes place once a year at the Mount Cook Adventure Centre in the heart of the Peak District. It is a chance to get away and meet other young adults from across the UK.

The weekend is open to any young adult aged between 18 and 30 who has Chronic Kidney Disease, including those who have had a kidney transplant or who are on dialysis.

There are a range of activities on offer each year, including archery, nature walks, high ropes, rock climbing, zipwire, arts and crafts, social events and many more.

Meals, activities and accommodation are free. All you are asked is to contribute towards the cost of the transport to and from the venue. There is a minibus which takes the young adults from Devon, Cornwall and Bristol together.

“I have haemodialysis three times a week in a unit with much older people, so spending a weekend each year sharing experiences with people my own age going through similar challenging experiences is really helpful and encouraging,” Chris, 22, University Student.

For more information about the weekend, please contact Ali Jenkins on 0117 414 5213, or alison.jenkins2@nbt.nhs.uk.

The Transplant Games takes place every year in different locations around the country. Almost all games and sports are included so do think about taking part.

In August 2024 they are being held in Nottingham. Please check the website for up to date information:

British Transplant Games 2024 

Prescription charges

If you need to buy more than 5 prescription items in 4 months or 14 items in 12 months you will find it cheaper to buy a pre- payment certificate (PPC). Your local pharmacist can give you an application form FP95. You may apply for free prescriptions if: 

• You are claiming certain benefits or allowances.
• You have diabetes mellitus controlled by medication.
• You have epilepsy controlled by medication.
• You have a permanent fistula (for example caecostomy, colostomy, laryngostomy, or ileostomy) requiring continuous surgical dressing, or requiring an appliance.

Kidney disease and its treatment are not mentioned in the law but because of the last item above it is usually considered that you will be exempt if:

• You have a permanent fistula, graft, or dialysis catheter that is currently being used for dialysis.
• You have a catheter for peritoneal dialysis.

If any of the above applies, you will need to get a FP92A form from your GP to apply for an exemption certificate. After having a kidney transplant you will no longer be exempt from prescription charges due to your renal condition.

NHS Low Income Scheme

If you are on a low income you may be eligible to receive financial help through the NHS Low Income Scheme. To do so, you would need to complete an HC1 form to apply for an HC2 certificate. HC1 forms are available from Job Centre Plus offices and most NHS hospitals. Your doctor, dentist, or optician may also be able to give you one. Alternatively, you can get an HC1 form by calling 0845 610 1112.

Whether you qualify for help is based on a comparison between your weekly income and your requirements at the time the claim is made.

You will qualify for a full help HC2 certificate (which includes free NHS prescriptions) if your income is less than or equal to your requirements, or your income is greater than your requirements by no more than half the current English prescription charge.

You will qualify for a limited help HC3 certificate if your income is greater than your requirements by more than half the current English prescription charge. The HC3 certificate shows how much you have to pay towards your health costs.

Certificates are usually valid for periods of between six months and five years, depending on your circumstances. Find out more about the NHS Low Income Scheme (LIS) and other NHS help with costs:

Check what help you could get to pay for NHS costs - NHSBSA

Personal Independence Payment

The PIP system replaced the previous disability living allowance in 2016. Since then, patients have been able to apply for PIP. This system has two patrts based on daily living and mobility, with a ‘standard’ and ‘enhanced’ payment rate in both cases.

To claim for PIP, you must be 16 to 64 years old. If you need help with transport or moving around, you may qualify for the mobility component. For the daily living component, you must be having difficulties in the following areas:

• Preparing/eating food.
• Washing/bathing.
• Dressing/undressing.
• Financial decisions.
• Communication.
• Management of medicines or treatments.

The National Kidney Federation (NKF) has a webpage which goes into much greater detail on this subject:

Benefits Information for Patients and Carers | National Kidney Federation

The following is advice for people with kidney problems about buying medicines that have not been prescribed by a doctor.

• Specialist Renal Pharmacists are available for advice on the wards and in the Pharmacy Department.
• Ensure the pharmacist is aware of your kidney problems and has a full list of your current medicines.
• Try to use the same pharmacy so the staff know you and your medicines.
• Some medicines you can buy may only be suitable for you under supervision from a doctor. Some of these are listed on the next page in the ‘avoid’ column.
• If you need to use a product frequently or for more than a few days at a time you should tell the doctor.

The following pages contain very brief general information about some common medicines. Not all medicines are listed and if in doubt you should talk to your pharmacist, doctor, or nurse.

Vitamins

Avoid vitamin A, vitamin D and cod liver oil. More specialist advice can be obtained from your dietitian or renal pharmacist.

Herbal medicines

Due to lack of information on interactions and side effects these are best avoided. Herbal medicines like St John’s Wort can sometimes cause serious side effects when taken with other medicines. If you wish to use a herbal product please contact your doctor or pharmacist for advice.

Aromatherapy

Some aromatherapy oils are unsuitable for use in patients with renal problems. Hyssop and rosemary oil should be avoided. Discuss with your doctor or pharmacist before using aromatherapy products.

Homeopathics

These are generally considered safe. Please discuss with your doctor or renal pharmacist before starting homeopathic medicines.

Useful books

• Kidney Dialysis and Transplants - Andy Stein & Janet Wild
• Kidney Failure: The facts - Stuart Cameron
• Kidney Failure Explained - Andy Stein & Janet Wild
• Oxford Handbook of Dialysis - Jeremy Levy, Julie Morgan & Edwina Brown

Useful websites 

Kidney Care UK

Kidney Care UK, the UK's leading kidney patient support charity | Kidney Care UK

Young Adult Kidney group (YAKG)

Young Adult Kidney Group (YAKG) | Kidney Care UK

National Kidney Federation

National Kidney Federation

NHS 111

Get help for your symptoms - NHS 111
Medical advice when it’s not an emergency.

Holiday dialysis information

Global Dialysis

Transplant and donation information

Home - NHS Organ Donation

CAPD Training (Continuous Ambulatory Peritoneal Dialysis) 

0117 414 8004

Dieticians 

0117 414 7555

Dr Menon’s Secretary 

0117 414 7707

Home Dialysis Team 

0117 414 8004

Patient Education Nurse  

0117 414 8004

Renal Dialysis Unit 

0117 414 3540

Renal Outpatients 

0117 414 1960

Renal young adult support worker 

(Alison Jenkins: alison.jenkins2@nbt.nhs.uk) 
0117 414 5213

Transplant Coordinators 

0117 414 7704

Transplant Specialist Nurses

(Maria Langdon, Claire Adams & Lisa Tierney) 
0117 414 5213

Renal ward 8b 

0117 414 4800

The NKF was set up in 1978. It is the only national kidney organisation for patients run by patients. It seeks to promote the welfare of patients and their carers throughout the UK who are experiencing renal disease. Funding is provided by Kidney Patient Associations, donations, and sponsorship.

Each year the NKF hosts a National Conference where several hundred patients and carers get together for a weekend to listen to specialist speakers, ask questions, and discuss problems or issues which affect them. The Federation publishes a quarterly magazine ‘Kidney Life’, which is free to members.

If you would like to know more about membership in the NKF, visit their website: www.kidney.org.uk/about-us/main-member/

This group is run by young patients for young patients aged 0-18 and 18-40 years with any form of renal disease in the UK. A quarterly newsletter is produced and there is a Pen Pal scheme and Talkline available through the NKF website.

Leaflets can be found in the inpatients department.

Contacts Helpline 0845 601 0209 – cost of a local call from a landline (costs from mobiles may vary depending on your network). Website: www.kidney.org.uk

This local charity is very supportive of the young people cared for in the trust. In addition they provide funding for our twice yearly social events as well as contributing towards the cost of transport to the weekend away. They welcome all new members. Website: www.bakpa.org.uk

This is a short film about what happens when you have a fast MRI scan. A member of the radiographers team will welcome you when you arrive for your scan. They will ask you some standard safety questions to make sure it is safe for you to have the scan and you'll be asked to sign a form to confirm your answers. Before the scan you'll be asked to change into a gown please put your personal belongings and anything you have with you that is made of metal into a locker for safekeeping.

In order for the fast MRI scan to show up cancers clearly you will need to have a dye injected during your scan. To make this possible a small plastic cannula is placed into a vein in your arm before you go into the scanning room. This is an essential part of a Fast MRI scan. You may experience a cold feeling in your arm during the injection but side effects such as mild nausea or headache are uncommon, happening just once or twice in every thousand injections. 

The MRI scanner is a large magnet you'll be asked to lie face down on a padded table placing your breasts beneath you in a special cradle called a breast coil. The radiographer will take time to make sure you are in the correct position and are as comfortable as possible. The scanner is very noisy and you likely to hear it as you enter the scanning room. The radiographer will connect the canula in your arm to a pump so that the dye can be injected automatically at the right time during the scan. You will be given headphones to protect your ears from the loud noise of the scanner and you can choose whether or not to have music played through them. You will also be given a call button that you can press to request to stop the scan at any time. Once you're in the scanner the Fast MRI can take less than 5 minutes. Please tell the radiographer before the scan starts if you're not comfortable as it is very important that you relax and keep absolutely still throughout the scan is even a small movement of the breasts or chest can stop the images from being clear.

During this time the radiographer operates the scanner so that it takes several different sets of pictures. 

“okay you're doing really well this next scan the dye is going to come into your arm”

The noise can change depending on the pictures being taken. At the end of the scan the radiographer will help you up from the table your cannula will be removed and you can get dressed again.

We hope your found the short film helpful and we look forward to welcoming you for your Fast MRI scan in the near future. If you do have any questions please call your local research team or ask a member of the radiographers team when you arrive for your scan.

There is a chance that if you are taking, or have been recently taking, Pre-exposure Prophylaxis (PrEP) that a negative test result will be a “false negative”. This means that the test would not identify the early stage of a HIV infection. It is therefore important that people who take PrEP do not rely on this screening test in the ED, and should continue to have regular HIV and sexual health testing.

How else can I access HIV and other sexual health testing?

Unity Sexual Health clinic can provide information about and tests for HIV and other sexually transmitted infections. 

You can request a home testing kit for HIV through the Unity sexual health website.

Welcome to Unity Sexual Health | Unity Sexual Health

It is also possible to talk to your GP about having these tests if you have a particular concern.

"Opting out" means you choose not to have these specific blood borne virus screening tests, you can still have other blood tests. 

If you opt out of the screening test, this decision will be recorded in your medical notes. The computer system will 'block' the tests from being done for 12 months. Therefore, it is important to tell staff each time you are having a blood test in the Emergency Department if you still want to opt out. 

What if my doctor thinks I need one of these tests? 

If your doctor or clinician feels it is important that you have a test for one (or more) of these conditions, they can still arrange that specific test for you. This specific test will not be affected if you decide to opt out of the screening test. 

What if I decide I want to have these tests later?

If you decide that you would like to talk about having tests for HIV, hepatitis B, and hepatitis C, after you visit the ED, you can speak to your GP or access testing through Unity Sexual Health clinic. You can request a test for one or all three, and you can request a home testing kit for HIV through the Unity Sexual Health. 

Welcome to Unity Sexual Health | Unity Sexual Health

HIV stands for Human Immunodeficiency Virus. ‘Immunodeficiency’ refers to the weakening of the immune system by the virus. HIV can be cauing damage silently for many years; you may have no signs or symptoms.  

For the vast majority of people with HIV, treatment is normally a fixed dose combination tablet, taking it once a day. The treatment is so effective that it stops the virus from reproducing in your body. It reduces the amount of virus in the blood to undetectable levels, meaning you cannot pass on HIV and can expect to live a normal lifespan.  

Further support and information: 

Home | Terrence Higgins Trust (tht.org.uk)

HIV and AIDS - NHS (www.nhs.uk)

Hepatitis C affects your liver and can lead to serious liver problems if not treated. You can have hepatitis C for many years and not notice any symptoms, but this does not mean it isn’t affecting your liver.  Hepatitis C is curable. Treatment is a course of tablets, taken for 8-12 weeks. You are unlikely to experience side-effects from the treatment. 

Further information and support: 

The Hepatitis C Trust | Hep C charity (hepctrust.org.uk)

Hepatitis C - NHS (www.nhs.uk)

Hepatitis B affects your liver. Most adults that contract hepatitis B recover fully, but if contracted as a child it is unlikely that the body will clear the virus on its own. Treatment is very effective and is usually in the form of tablets. Some people do not need treatment for the virus as it may not be causing damage to the liver. They will need regular check-ups though. An important other step is to vaccinate those that live with you and these vaccines can be provided free of charge by your GP.  

Further information and support at: 

Hepatitis B - British Liver Trust

Hepatitis B - NHS (www.nhs.uk)