Brain Tumour Support Worker
The Brain Tumour Support Worker is part of the Skull Base Team and works alongside the registered practitioners to improve care and help patients to self- manage their recovery and return to leading a healthy life. The Brain Tumour Support Worker is not a qualified clinician but is trained and experienced in supporting people with a brain tumour diagnosis.
What they do
- Support people so they can access the appropriate information.
- Direct or refer to a range of services and charities.
- Help patients and carers understand signs, symptoms, or situations to be aware of that would indicate concern.
- Offer Personalised Care and Support Planning (PCSP). This involves a conversation in which you can discuss your health and well-being in relation to your brain tumour diagnosis.
- Create a personalised care and support plan together with you, to support your concerns, priorities, and what matters to you.
Your support worker is happy to discuss any concerns that you might have so please let them know. Here are some examples of the concerns that your support worker can discuss with you:
- Physical concerns such as: wound care, fatigue, pain or discomfort, sleep problems, appetite, sight or hearing.
- Emotional concerns such as: worry or anxiety, thinking about the future, loneliness, isolation or uncertainty.
- Practical concerns such as: money or finance, travelling, pets, smoking cessation, working.
- Other information and support such as: exercise, diet and nutrition, support groups, complementary therapies.
NGS Macmillan Wellbeing Centre
We offer help and information about different kinds of cancers and treatments. We also talk about money, benefits you might get, what to eat, and exercises to do. If you have concerns or just want to talk with one of the team, we have time to listen and help you.
The centre offers ‘drop-ins’ for coffee and a chat or appointments for specific needs.
Opening times: Monday to Friday, 8:30 - 16:15
Phone: 0117 414 7051
Brain tumour support feedback
During your treatment at North Bristol NHS Trust, you met our new Brain Tumour Support worker. This is a new service, and we would appreciate you taking the time to provide this feedback. Please note that your feedback is anonymous and will not affect the care or treatment you receive now or in the future.
You can give us feedback by:
- Filling out the survey online: Brain Tumour Support (office.com)
- If you would like a paper copy of the feedback form please phone us on 0117 414 7534. Leave a message with your name and date of birth, and we will send a form to you.
How to contact us
The Skull Base Team
- Daniela Braga, Brain Tumour Support Worker
- Rosalind Taylor, Advanced Clinical Practitioner
- Danielle Kelly, Advanced Clinical Nurse practitioner
- Maria Charles, Advanced Nurse Practitioner
- David Lindsey RGN, Advanced Nurse Practitioner
We are available:
- Monday to Friday, 07:30-15:00
- 0117 414 7534
© North Bristol NHS Trust. This edition published September 2024. Review due September 2027. NBT003687
