NICU Useful resources and information

This page has services and resources that you may find useful. This is not an exhaustive list and may not be suitable for everyone.

Information written by the team at Southmead Hospital NICU

Useful resources and information for NICU families

Parents and carers of a baby in the NICU

Bliss

Support for parents and families of premature or very poorly babies, with information on being a parent on the neonatal unit. 
For babies born premature or sick | Bliss

Rainbow Trust

Supporting families (including siblings) with a very poorly child. Also includes a continued service at home.
Supporting Children and Families | Rainbow Trust Children's Charity

South West Neonatal Network

A group of parents and carers with lived experience of caring for a child who has been admitted to any of the 12 neonatal units in southwest England.
South West Neonatal Network (swneonatalnetwork.co.uk)

Mothers for Mothers

Maternal mental health and wellbeing support, advice, and information to women/birthing people.
Mothers for Mothers | Postnatal mental health support

Black Mothers Matter

Supporting and celebrating Black pregnancies across Bristol (and the UK).
Black Mothers Matter

Project Mama

Offering migrated mothers holistic and compassionate support during pregnancy, birth and early motherhood. 
Project MAMA

LGBT Mummies

Support for LGBT+ women and people during the perinatal and neonatal journey.
LGBT Mummies

Dad Matters

Providing one to one support, antenatal outreach, and online resources for fathers during the first 1001 days of their parenting journey, with support for dads suffering with depression, anxiety, and post-traumatic stress.
Bristol – Dad Matters

Birth Trauma Association

Supporting parents who have experienced birth trauma.
The Birth Trauma Association

Twins Trust

Supporting families with twins, triplets or more through every milestone.
Twins Trust | Twins Trust - We support twins, triplets and more.

Siblings of a baby in the NICU

Spoons

Support for the whole family, including siblings, from admission to the neonatal unit and beyond.
Spoons Charity - Neonatal Family Support

Rainbow Trust

Supporting families (including siblings) with a very poorly child. Also includes a continued service at home.
Supporting Children and Families | Rainbow Trust Children's Charity

Information about having a baby in the NICU

The NICU Foundation

A series of online videos with information about a stay in neonatal care and preparing to take your baby home.
Home (nicufoundation.co.uk)

Small Wonders

A series of bite-size films about birth, expressing, holding your baby in NICU, preparing for home and beyond.
Small Wonders | Best Beginnings

Understanding Your Child (NHS Solihull)

A free online course designed to help parents learn about their baby’s development, understand their needs and read their cues, and support for emotional wellbeing.
Understanding Your Child (heiapply.com)

PEEPS

Support for parents, families and friends of those who have experienced HIE (hypoxic ischaemic encephalopathy).
Peeps HIE Charity | HIE Awareness & Support (peeps-hie.org)

SWAN (Syndromes Without A Name)

Support for families of children with undiagnosed genetic conditions.
SWAN UK (Syndromes Without A Name) - Genetic Alliance

Families facing or experiencing infant loss

Tommy’s

Support for parents following baby loss, including miscarriage, stillbirth, termination for medical reasons, and neonatal death.
Saving babies' lives - Charity for Babies | Tommy's (tommys.org)

The Bluebell Foundation

Offers support and information to parents and families affected by the death or life-limiting illness of a baby or child, infertility, pregnancy loss or difficult decisions relating to pregnancy.
Support For Grieving Families - The Bluebell Foundation

Petals

Specialist counselling for parents who have experienced loss, including stillbirth and neonatal death (professional referral only).
Petals, The baby loss counselling charity - Petals Charity

2Wish

Support for parents and immediate family after a sudden and unexpected death of a child, including bereavement support, counselling, play therapy for siblings & support groups.
Home - 2 Wish

SANDS

Safe space for bereaved families to grieve and find support following the death of a baby.
Sands | Saving babies' lives. Supporting bereaved families.

Child Bereavement UK

Help and support for children, young people, parents and their families to rebuild their lives when a child grieves or when a child dies.
Child Bereavement UK

Purple Butterfly – The Skye High Foundation

Supporting families during and after the loss of a twin, triplet or multiples.
Home | Skye High Foundation (theskyehighfoundation.com)

Winston’s Wish

A charity supporting children to find their feet when their worlds are turned upside down by grief. Support for their families with professionals involved.
Winston's Wish - giving hope to grieving children (winstonswish.org)

Community support for you and your family

Bristol Family Hubs

There to support every family in the city with children up to 19 (or 25 with special educational needs and disabilities). Brings together all the things a family may need in one place.
Bristol Family Hubs

Home Start

Support, friendship, and practical help to parents of young children.
Home-Start Bristol and South Gloucestershire | Supporting families in Bristol and South Gloucestershire (homestartbsg.org.uk)

Rock-a-bye

Offers group support for new parents, running for 10-12 weeks in Children’s Centres across Bristol, for parents and pre-crawling babies.
Rockabye

Maternity Action

Service dedicated to promoting, protecting, and enhancing the rights of pregnant women, new mothers and their families to employment, social security and healthcare.
Home - Maternity Action

Adults experiencing general mental health difficulties

NHS Talking Therapies

Evidence-based psychological therapies for people struggling with depression, anxiety, or post-traumatic stress. Mothers in the perinatal period are currently prioritised on the waiting list. Can self-refer or be referred via GP.

NHS talking therapies for anxiety and depression - NHS (www.nhs.uk)

If you are struggling with mental health difficulties or finding it hard to get through your normal daily activities as a result of any of the above issues, please speak to a trained health professional, such as your GP.

If you are having any thoughts of self-harm or suicide, please immediately contact your GP, call 111 (option 2) or call 999. Alternatively, please attend your local emergency department.

Feedback

We would just like to say a big thank you to all the nurse’s and doctor’s that looked after George and making a difficult time easier and always having the time to talk and explain his treatment and what was going on a day to day basis.

© North Bristol NHS Trust. This edition published April 2025. Review due April 2025. NBT003723.

NICU Useful resources and information